Comments for Lyme Disease Blog

Comment on Lyme Disease Symptoms by Pam Dodd

Pam Dodd — Sat, 16 Mar 2013 20:16:20 +0000

I’m sending you both UT and CO Lyme info, Amy. Thanks for asking.

Comment on Babesia: Common Lyme Disease Co-infection by Pam Dodd

Pam Dodd — Sat, 16 Mar 2013 20:15:19 +0000

Nicole, it is unfortunately “normal” to have more infections than just Lyme. Having multiple co-infections makes treatment difficult. It usually takes far longer than most people expect to begin healing from this onslaught. I’m not a doctor and so can’t comment on your C4A questions. But I can say for your children, you should find a Lyme-literate doctor who knows how to treat kids. Thanks for asking.

Comment on Chronic Lyme Disease by Pam Dodd

Pam Dodd — Sat, 16 Mar 2013 20:11:10 +0000

Christine, you need to see a doctor who knows how to diagnose Lyme correctly and treat it adequately. That unfortunately is probably not your regular doctor or even a rheumatologist. If you tell me where you live now, I’ll send you info on how to find one. Glad you asked and apologies for my very tardy reply.

Comment on What’s an LLMD? by Pam Dodd

Pam Dodd — Sat, 16 Mar 2013 20:05:33 +0000

Michael, I’m sending you Boston Lyme info. Thanks for asking.

Comment on What’s an LLMD? by Pam Dodd

Pam Dodd — Sat, 16 Mar 2013 19:46:33 +0000

I’m sending you OH Lyme info MJ. Many people with Lyme can have few or no markers; the tests are not reliable. Thanks for asking.

Comment on Lyme Disease Symptoms by Amy

Amy — Sun, 20 Jan 2013 20:03:25 +0000

I am wondering if you have any doctors in Utah or Colorado for Lyme disease.

Thanks
Amy

Comment on Babesia: Common Lyme Disease Co-infection by Nicole

Nicole — Tue, 15 Jan 2013 02:42:39 +0000

I have a question. I have babesia, bartonella, rocky mountain, mycroplasma, typhus and most likely borrelia (came back negative). My C4A levels are at 22,000. How severe is this? Or is this normal tohave so many co-infections? I just feel like I can’t get better. How long will I feel horrible? On top of this my 9 year old has Bartonella and Lyme and my 3 year old has Lyme. My 5 year old has shown exposure but it is dormant (we think) and my husband has it. I am seeing a great Dr. But I feel like i need more help or at least more opinions. Especially with the 3 year old. Her inflammtion levels are 11,000. Is this high for a 3 year old and do I need to be worried?

Comment on Chronic Lyme Disease by Christine

Christine — Mon, 14 Jan 2013 22:05:47 +0000

I lived in southern Ohio in a tick infested area for several years. It was so bad I had to use Kleenex to pick up ticks that were climbing up the walls in my house to flush them. A month after I moved from there to northern Idaho, I developed a bulls-eye rash. I saw a local physician who diagnosed ringworm and gave me a topical cream. Over the years, I developed pain and swelling in my knees and became more and more “clumsy”, tripping and falling for no apparent reason. Six years after the rash, I had a six month long series of Bells-palsy episodes along with eye inflammation. The clumsiness continued. Ten years after the rash I got a flu shot and within a week,I developed muscle pain in my arm that spread over the next few months to include both arms, both legs, my neck and back. I began having tingling in my fingers and toes. My muscles became extremely fatigued and I began walking with a cane. I then began having muscle spasms and shooting pains in my shoulder joints and incredible pain and deep aches in my hips. It’s been 2 1/2 years since that flu shot (catalyst) and I have not had a pain free day since. It has been 15 years since my tick-infested house and my rash. I have been tested for MS, Lupus, Guillian-Barre, ALS, and Lyme (ELISA and Western Blot). Everything has been negative. I have asked to be retested for Lyme using a different lab but my doctor refuses. I have been on disability for almost 2 years now. I am printing the ILADS information and headed back to my doctor. I am SURE I have chronic Lyme. I now have to convince him…or the rhuematoligist he just referred me to. I’ve had 2 positive ANA titers, a “minimal” delay on my SSEP, no problem (they say) with my lumbar puncture. I am more than frustrated! Thanks for helping to get more recognition for CHRONIC Lyme!

Comment on What’s an LLMD? by Michael I.

Michael I. — Mon, 14 Jan 2013 20:19:08 +0000

I was looking for a LLMD in the Boston area – we live in Norfolk (02056) but will travel to Boston to see the best if needed

Comment on What’s an LLMD? by MJ

MJ — Mon, 14 Jan 2013 16:39:39 +0000

Central Ohio Area
Need a doctor for family member
lyme test not high enough
but markers for flagella—
and markers for another