Comments on: Lyme Disease Symptoms http://www.lymediseaseblog.com/lyme-disease-symptoms/ Your Personal Community for Chronic Lyme Support Mon, 06 Sep 2010 19:09:54 +0000 hourly 1 http://wordpress.org/?v=abc By: Pamela Dodd http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1418 Pamela Dodd Mon, 06 Sep 2010 19:09:54 +0000 http://www.lymediseaseblog.com/?p=184#comment-1418 I'm not a physician so I couldn't say. It seems from my own experience and that of others I know with Lyme that it it's been around for a long time, it can affect most body systems. It can also stir up other infections you have. Only a Lyme-literate physician can figure out these things, especially if he/she has an infectious disease background. It's not easy. I’m not a physician so I couldn’t say. It seems from my own experience and that of others I know with Lyme that it it’s been around for a long time, it can affect most body systems. It can also stir up other infections you have. Only a Lyme-literate physician can figure out these things, especially if he/she has an infectious disease background. It’s not easy.

]]> By: Patsy http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1417 Patsy Mon, 06 Sep 2010 18:03:12 +0000 http://www.lymediseaseblog.com/?p=184#comment-1417 I moved from Ohio to Colorado in 2006. The only time I remember being bitten by a tick was 40 yrs ago. I used to go to maine but haven't been there in 25 yrs. I have had flare ups of whatever is in my body 5 times since Sept. 2007. Can lyme cause extremely high fevers and pleural effusion? My blood work also goes crazy. Mis diagnosed with RA. I moved from Ohio to Colorado in 2006. The only time I remember being bitten by a tick was 40 yrs ago. I used to go to maine but haven’t been there in 25 yrs. I have had flare ups of whatever is in my body 5 times since Sept. 2007. Can lyme cause extremely high fevers and pleural effusion? My blood work also goes crazy. Mis diagnosed with RA.

]]> By: Pamela Dodd http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1416 Pamela Dodd Mon, 06 Sep 2010 14:16:23 +0000 http://www.lymediseaseblog.com/?p=184#comment-1416 Darlene - Yes, Lyme can be tested if you've had it for many years. Here's info on reliable tests to ask your doctor for. Also make sure to test for yhe common Lyme coinfections Bartonella, Babesia, and Ehrlichia too: IGeneX, Inc. 797 San Antonio Rd. Palo Alto, CA 94303 Tel. (800) 832-3200 http://www.igenex.com/ If you live in NY State, you’ll need to take special tests. Ask about which they are. MDL Medical Diagnostic Laboratories East Gate Business Center 133 Gaither Drive, Suite C MT. Laurel, NJ (877) 269-0090 http://www.mdlab.com/ Darlene – Yes, Lyme can be tested if you’ve had it for many years. Here’s info on reliable tests to ask your doctor for. Also make sure to test for yhe common Lyme coinfections Bartonella, Babesia, and Ehrlichia too:

IGeneX, Inc.
797 San Antonio Rd.
Palo Alto, CA 94303
Tel. (800) 832-3200
http://www.igenex.com/
If you live in NY State, you’ll need to take special tests. Ask about which they are.

MDL Medical Diagnostic Laboratories
East Gate Business Center
133 Gaither Drive, Suite C
MT. Laurel, NJ
(877) 269-0090
http://www.mdlab.com/

]]> By: Pamela Dodd http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1415 Pamela Dodd Mon, 06 Sep 2010 12:34:31 +0000 http://www.lymediseaseblog.com/?p=184#comment-1415 Tim - If you pulled the two ticks off you before you were bitten, you probably don't have Lyme. If you were bitten by infected ticks, it's hard to say whether your symptoms could be attributable to Lyme or to your previous health issues. I'd recommend joining the Virgina Yahoo Lyme Group and asking for names of DC area docs who could test/treat you if you do have Lyme. Group membership is free. Members with info will be glad to private message you; names of Lyme doctors can't be given directly in any online Lyme forums. Here's the link: http://health.dir.groups.yahoo.com/group/VirginiaLyme/?v=1&t=directory&ch=web&pub=groups&sec=dir&slk=23. Good luck! Tim – If you pulled the two ticks off you before you were bitten, you probably don’t have Lyme. If you were bitten by infected ticks, it’s hard to say whether your symptoms could be attributable to Lyme or to your previous health issues. I’d recommend joining the Virgina Yahoo Lyme Group and asking for names of DC area docs who could test/treat you if you do have Lyme. Group membership is free. Members with info will be glad to private message you; names of Lyme doctors can’t be given directly in any online Lyme forums. Here’s the link: http://health.dir.groups.yahoo.com/group/VirginiaLyme/?v=1&t=directory&ch=web&pub=groups&sec=dir&slk=23.

Good luck!

]]> By: Tim Davis http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1414 Tim Davis Mon, 06 Sep 2010 00:22:34 +0000 http://www.lymediseaseblog.com/?p=184#comment-1414 I live in Springfield, Va. in an area where there is plenty of wooded area, tall grass and weeds. I pulled two ticks off of me a couple of months ago that had small white dots on them. Are these the typical ticks that carry Lyme? I get an "Ice Cold" feeling completely around my waist and down my legs to my ankles almost every time I stand up or try to walk. My legs get very weak and I have to sit down quickly before I fall down. I have regular headaches that last the entire day. I see flashing lights around both of my eyeballs that have the appearance of a "Kaleidoscope" I also have head fog and have trouble remembering and concentrating. I am 57 years old, have had a double by-pass heart surgery, two cervical (neck area) surgeries and have three buldging discs in my lower back. I realize that my lower back problems could be causing the "Ice cold" feelings in my waist and legs but I was wondering if anyone here has these problems and if so, what have they done about it, if anything. I am the primary caretaker of a family member who is paralyzed from the neck down. I have to be here 24/7 and cannot work. I have no income or insurance. Are there any clinics in the Washington, DC area that will test/treat someone like myself for Lyme? Thank you for your input I live in Springfield, Va. in an area where there is plenty of wooded area, tall grass and weeds.

I pulled two ticks off of me a couple of months ago that had small white dots on them. Are these the typical ticks that carry Lyme?

I get an “Ice Cold” feeling completely around my waist and down my legs to my ankles almost every time I stand up or try to walk. My legs get very weak and I have to sit down quickly before I fall down. I have regular headaches that last the entire day. I see flashing lights around both of my eyeballs that have the appearance of a “Kaleidoscope” I also have head fog and have trouble remembering and concentrating.

I am 57 years old, have had a double by-pass heart surgery, two cervical (neck area) surgeries and have three buldging discs in my lower back. I realize that my lower back problems could be causing the “Ice cold” feelings in my waist and legs but I was wondering if anyone here has these problems and if so, what have they done about it, if anything.

I am the primary caretaker of a family member who is paralyzed from the neck down. I have to be here 24/7 and cannot work. I have no income or insurance. Are there any clinics in the Washington, DC area that will test/treat someone like myself for Lyme?

Thank you for your input

]]> By: Darlene http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1413 Darlene Sun, 05 Sep 2010 00:27:20 +0000 http://www.lymediseaseblog.com/?p=184#comment-1413 Hi Penny, I was wondering if you well now? I feel so bad you had to go through that. I think I have had lyme disease for over 20 years. My Dad was a deer hunter. There was always ticks around us during deer hunting seasons. When I was 20 I had bulls eye rashes on my lower leg. I had that at least 4 different times. I never knew about lyme disease until recently. I have been diagnosed with arthritis, fibromyalgia, migraines several times a week, anxiety, I have muscle and joint, jaw, stiff neck pains so bad. The list goes on and on. I ache and feel sick just about every day of my life. I was wondering if the Lyme disease test will show positive after all these years? Did you have a blood test to diagnose it? I just want to know what to ask my Doctor for. I'm going this week. I really need help and would appreciate any advice. Thank you so much, I really hope you are all better now. Sincerely, Darlene Hi Penny,
I was wondering if you well now? I feel so bad you had to go through that.
I think I have had lyme disease for over 20 years. My Dad was a deer hunter. There was always ticks around us during deer hunting seasons.
When I was 20 I had bulls eye rashes on my lower leg. I had that at least 4 different times. I never knew about lyme disease until recently. I have been diagnosed with arthritis, fibromyalgia, migraines several times a week, anxiety, I have muscle and joint, jaw, stiff neck pains so bad. The list goes on and on.
I ache and feel sick just about every day of my life.
I was wondering if the Lyme disease test will show positive after all these years? Did you have a blood test to diagnose it? I just want to know what to ask my Doctor for. I’m going this week. I really need help and would appreciate any advice.
Thank you so much, I really hope you are all better now.
Sincerely,
Darlene

]]> By: Pamela Dodd http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1407 Pamela Dodd Sat, 04 Sep 2010 13:10:29 +0000 http://www.lymediseaseblog.com/?p=184#comment-1407 Two possibilities, Patsty. You got Lyme years ago in the NE. Your Dr. used an unreliable test. Was it Igenex or MDS or the usual ELISA? Two possibilities, Patsty. You got Lyme years ago in the NE. Your Dr. used an unreliable test. Was it Igenex or MDS or the usual ELISA?

]]> By: Patsy http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1388 Patsy Fri, 03 Sep 2010 13:21:05 +0000 http://www.lymediseaseblog.com/?p=184#comment-1388 Has there been any cases of Lyme in Colorado? My Dr. says we don't have the tick that carries Lyme in Col.and since I haven'y been to the North east in many yrs. that i don't have it. My test came back neg. for lymes. Has there been any cases of Lyme in Colorado? My Dr. says we don’t have the tick that carries Lyme in Col.and since I haven’y been to the North east in many yrs. that i don’t have it. My test came back neg. for lymes.

]]> By: The Three Stages of Lyme Disease | Releasing The Press http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1229 The Three Stages of Lyme Disease | Releasing The Press Sat, 28 Aug 2010 18:44:04 +0000 http://www.lymediseaseblog.com/?p=184#comment-1229 [...] didn’t know he or she had been bitten and had minimal or no Stage 1 symptoms.  During stage 2, Lyme symptoms may appear in the joints, heart, blood vessels, lungs, liver, spleen, stomach, muscles, eyes and [...] [...] didn’t know he or she had been bitten and had minimal or no Stage 1 symptoms.  During stage 2, Lyme symptoms may appear in the joints, heart, blood vessels, lungs, liver, spleen, stomach, muscles, eyes and [...]

]]> By: Pamela Dodd http://www.lymediseaseblog.com/lyme-disease-symptoms/#comment-1222 Pamela Dodd Sat, 28 Aug 2010 13:25:35 +0000 http://www.lymediseaseblog.com/?p=184#comment-1222 Yes, your symptoms sound very familiar, Allison. If by quick test for Lyme you mean the CDC Elisa test, it's very unreliable. I'd request you be retested with the IGeneX test. You can get the test sent to you for free from http://igenex.com. Click on What Test(s) to Order. Also order the companion test for co-infections (Babesia, Bartonella, & Ehrlichia). You never know how many other infections may be present with Lyme. Note that there are specific tests if you live in New York state. Get your doctor to order a blood draw and send the tests back to IGenex. It usually takes 3 weeks to get results. If you do have the IGeneX test, stop back here. Most doctors who don't regularly treat Lyme don't usually know how to interpret the results. Good luck! Yes, your symptoms sound very familiar, Allison. If by quick test for Lyme you mean the CDC Elisa test, it’s very unreliable. I’d request you be retested with the IGeneX test. You can get the test sent to you for free from http://igenex.com. Click on What Test(s) to Order. Also order the companion test for co-infections (Babesia, Bartonella, & Ehrlichia). You never know how many other infections may be present with Lyme. Note that there are specific tests if you live in New York state. Get your doctor to order a blood draw and send the tests back to IGenex. It usually takes 3 weeks to get results. If you do have the IGeneX test, stop back here. Most doctors who don’t regularly treat Lyme don’t usually know how to interpret the results. Good luck!

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