Chronic Lyme Disease Support | Lyme Disease Blog

23. January 2009

Personal Chronic Lyme Disease Support

Having chronic Lyme Disease is no picnic.

It’s often a lonely road with nowhere safe to turn to get support beyond your doctor’s office. Mainly you feel lousy, sometimes for months or even years. This can have a major impact on your relationships, your job, and your pocketbook. If all this isn’t enough, you’ve got added stressors that don’t come along with other, better-known chronic illnesses. Stressors like: Some people, including many doctors, don’t think Lyme is a real disease. They consider you mentally unstable if [...]

30. May 2010

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Medical Guidelines Based on Minimal Evidence

Thanks to the California Lyme Disease Association (CALDA) for this heads up. According to Lorraine Johnson, the CALDA Lyme Policy Wonk, two poster sessions at the IDSA annual meeting last fall stated that most of IDSA treatment guidelines, including those for Lyme Disease, are based mainly on opinion, not actual scientific evidence. Only 15% of [...]

6. May 2010

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Bartonella Can Be Transmitted in Utero

Press Release from North Carolina State University: North Carolina State University clinical researcher Dr. Ed Breitschwerdt has found blood and tissue evidence of Bartonella in twins born to parents with chronic headaches, memory loss, shortness of breath, muscle weakness, and fatigue. One twin, now 10, has been chronically ill since birth. His sister died at [...]

22. April 2010

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IDSA Review Panel Upholds Lyme Treatment Guidelines

Looks like the battle for long-term Lyme treatment continues! Press Release April 22, 2010 SPECIAL REVIEW PANEL UNANIMOUSLY UPHOLDS LYME DISEASE TREATMENT GUIDELINES Short-term Antibiotics Proven to be Best Treatment for Patients Infectious Disease Society of America News Release Arlington, Virginia – A special Review Panel has unanimously agreed that no changes need be made [...]

18. August 2009

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IDSA Lyme Hearing Review

I spent the day July 30, 2009 glued to two computers on my desk. On one I watched the streamed IDSA hearing. On the other I tweeted my comments with other Twitter members with Lyme. It was an exhausting day but well worth the effort. In a nutshell, nine IDSA panelists, none of them among [...]

20. July 2009

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IDSA Lyme Review Panel Hearing 7/30/09

On July 30, the Infectious Diseases Society of America (IDSA) will hold a day-long hearing in Washington DC to review its controversial 2006 Lyme disease treatment guidelines. This hearing is part of an antitrust settlement Connecticut Attorney General Richard Blumenthal negotiated to address “serious flaws” in the IDSA guidelines. Read the Attorney General’s press release [...]

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