Chronic Lyme Disease Support | Lyme Disease Blog

January 23, 2009

Personal Chronic Lyme Disease Support

Having chronic Lyme Disease is no picnic.

It’s often a lonely road with nowhere safe to turn to get support beyond your doctor’s office. Mainly you feel lousy, sometimes for months or even years. This can have a major impact on your relationships, your job, and your pocketbook. If all this isn’t enough, you’ve got added stressors that don’t come along with other, better-known chronic illnesses. Stressors like: Some people, including many doctors, don’t think Lyme is a real disease. They consider you mentally unstable if [...]

August 18, 2009

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IDSA Lyme Hearing Review

I spent the day July 30, 2009 glued to two computers on my desk. On one I watched the streamed IDSA hearing. On the other I tweeted my comments with other Twitter members with Lyme.
It was an exhausting day but well worth the effort.
In a nutshell, nine IDSA panelists, none of them among the 14 [...]

July 20, 2009

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IDSA Lyme Review Panel Hearing 7/30/09

On July 30, the Infectious Diseases Society of America (IDSA) will hold a day-long hearing in Washington DC to review its controversial 2006 Lyme disease treatment guidelines.
This hearing is part of an antitrust settlement Connecticut Attorney General Richard Blumenthal negotiated to address “serious flaws” in the IDSA guidelines.
Read the Attorney General’s press release on the [...]

May 5, 2009

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Making Fun of Lyme Disease is No Joking Matter

There was a Lyme community kerfluffle today with Kodak over their Mother’s Day ad on their Mom-A-Thon website.
The tongue-in-cheek idea of the promotion is to save a mother afflicted with Lackus Appreciatis, an “overwhelming feeling of recurring unappreciatedness and seasonal ingratitude.” In a video featuring actress and singer Florence Henderson, visitors are urged to join [...]

February 20, 2009

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Resources

Our list is in development. You could drive yourself nuts trying to read everything out there about Lyme. We’ll cut through the noise to provide you with the best, up-to-date info.
Here’s a good place to start:
The International Lyme and Associated Diseases Society
ILADS Brochures – to read online or download.
Treatment Guidelines – ILADS, Joseph Burrascano, [...]

February 19, 2009

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Getting Rid of Lyme

Early Stage Lyme
If Lyme Disease is diagnosed within the first few weeks after infection and treated with antibiotics for long enough, it can frequently be cured. Unfortunately, there’s no general agreement on what “long enough” means. Most doctors prescribe an antibiotic for two to three weeks, four weeks tops. Often this is [...]

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